Strollerderby

Controversy: Autism Backlash?

Posted by Amy S.F. Lutz

I've been following autism reports in the media since my oldest son was diagnosed seven years ago, towards the beginning of what many experts have called the autism "epidemic."  And while I thought that as more children were diagnosed, and more people affected - even indirectly - by this disorder, the understanding and sympathy towards these children would also increase, recent stories indicate that is not necessarily the case. 

In the past two weeks, an autistic teen was banned from his church by his own priest, and an autistic kindergartner was voted out of his classroom by his peers with the encouragement of his teacher.  I'm sure this isn't the first time something like this has happened, but it's the first time I ever heard about anything like it, and somehow it seems more ominous that these rejections happened so close together in time. 

Posts on these two incidents got a tremendous reader response - especially Brett's post on Alex Barton, the kindergartner, which at last count had received thousands of hits and over 40 comments.  Most of these comments were passionately supportive of the children - such as Twintown's description of Alex's situation as "heartbreaking" and his teacher as "cruel."  But there were also several parents who felt that one child should not be permitted to disrupt school - or a religious service - for everyone else.  Angry Mom asked, "Why are you attacking those parents who want a good education for their children, undisturbed by the disruptions of a handicapped child? . . . Sure, you parents of handicapped children have the laws and greedy lawyers to insure your children get whatever they want, but at what cost to those of us with normal children?  Not everyone embraces this 'feel-good,' 'love-one-another' politically correct crap."

Okay then.

Actually, as bothered as I am by the tone of that last comment, I understand that for all parents, the best interests of their own children are paramount.  And I do think parents of severely aggressive children who insist on keeping them in environments where there's significant risk of injury to themselves or other kids are guilty of the same kind of inflexibility parents of typical kids show when they claim that "crippled" kids "should be taught in separate facilities/classrooms."

But the fact is, although many autistic kids have episodes of disruptive behavior, few are so dangerous that they pose a legitimate hazard to those around them.  And as Sheri pointed out, "If inclusion is done CORRECTLY (meaning proper supports and training are offered to all teachers and aides), it BENEFITS BOTH handicapped and non-handicapped children alike." 

That's what makes these cases so difficult to discuss - what, if any, supports were in place for these children?  Although Alex apparently hasn't officially received his autism diagnosis, might the school have put an aide in the class if the teacher felt unprepared to manage him?  From all descriptions, Alex sounds like a smart, verbal child.  It's hard to imagine, even if he wasn't always the most cooperative kid in the class, that he didn't have a lot to contribute.

That's the most important thing to remember in these types of situations:  typical parents and kids aren't just doing us a favor when they tolerate our autistic kids around their kids.  Typical children in inclusion settings learn empathy, acceptance and perseverence from working and playing with their special-needs peers.  It sounds like a lot of adults could work on those skills as well.


+ DIGG + STUMBLE

Comments

 

leahsmom said:

Well-said.

Also - children with conditions or disabilities are going to grow up to be- what? Oh, that's right, adults with conditions or disabilities, in many cases. (Not to mention all those "normal" children who might develop conditions or disabilities later on in life, too.)  Peers need to learn how to work, play, and exist with others who  are different - and it will be harder to do at 21, when their intolerance keeps them from succeeding, than it is at 3.

May 30, 2008 8:00 AM
 

Treespeed said:

I think what would be interesting in this debate is to see some concrete studies on how much time today's overstrapped teacher spend on special needs students in their classroom compare to their 'normal' peers. Empathy is all well and good, but if a teacher has to focus the majority of their time on one student out of a class of 40 then it's hardly a benefit to the rest of the class.

May 30, 2008 12:36 PM
 

macmaddy said:

I think the most important point is that their is a dialogue, that we all continue to discuss these controversial and challenging issues.

Best wishes

May 30, 2008 1:45 PM
 

ArrowTech said:

I think that this is a good, thought-provoking comment with an important point.  Tolerance and empathy should be built into so many of today's settings that are supposed to be community places.  We forget that we, as the adults in those settings, have to set the tone.

However, I can see someone who feels powerless to stop or adjust an intrusive or distracting behavior becoming frustrated.  It's often a difficult situation, because it is usually hard for most people to rhetorically deal with their frustrations with someone who has a disability.

It's hard to walk up to a parent who loves attending church to tell that parent that the autistic son he/she attends church with is too loud for others to hear the service.  

It's hard to be the school teacher in a public school system that tells you they're cutting funding and mainstreaming everyone at the same time, and if you have problems with particular kids in your classroom dynamic those are problems you have to solve yourself.

We tend to deal with such things, difficult things, when we are most frustrated -- and these things are often frustrating.

May 31, 2008 3:33 AM
 

Sheri said:

What I think needs to be remembered here is that we are talking about individuals-people.  You can put them in any sub-group you want, but in the end they are all individuals.  Everyone is different.  

Each and every child has their own set of special needs.  

My two (testing will come for the youngest soon) both are on the autism spectrum.  But they are VERY different.  One is graduating from high school, the other is going into first grade.  Their classmates are different too.  Our oldest's classmates accepted him--warts and all.  Our younger son, not so much.  

We have just spoken to our school board and the possibility of getting another aide in the classroom and they are very open to that idea.  That is why inclusion is working for us.  

Tree, when inclusion is practiced properly--a ton of stuff has to be in place.  Teachers who are willing to be trained, aides have to be in place--many times team teaching (a special needs teacher and regular education teacher work together in a classroom) is practiced.  

It is easy to look at some of these news stories and think that inclusion is a total failure.  But there are so many success stories out there.  

I believe with all my heart BOTH of my boys will be valuable contributing assets to society because of the willingness of their teachers to truely educate them.  You and your family won't be paying for them.  

Maybe if we could see potential instead of broken people, we as parents could have some hope

May 31, 2008 4:12 PM

About Amy S.F. Lutz

Amy S.F. Lutz's work has appeared in dozens of literary journals, including Cream City Review, The American Poetry Review, Puerto del Sol, and Mid-American Review. She and her husband have five children. Amy and her sister chronicle their adventures in communal living in their blog whoelsewantstoliveinmyhouse.com

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