Strollerderby

Medical Mystery: A Baby Who Won't Grow

Posted by Kate Tuttle

When Suraya Brown was born 14 months ago she was extremely small -- the four weeks premature baby weight just over two and a half pounds -- but doctors didn't anticipate how unusual her case truly was until months later, when her growth stalled completely. Today, according to ABC news, the British toddler is about the size of the average newborn at around seven pounds, and the medical professionals are baffled as to what is causing her small size and delayed development. Tests for various forms of dwarfism and other genetic differences have come back negative, leaving her mother, Atlanta Ruzman, wondering when, if ever, she will get answers about her daughter's condition -- and her future. For now, she says the toddler is a "cheeky monkey" who is happy and alert.

Perhaps clues to Suraya's condition can be found in the case of Brooke Greenberg, a Maryland teenager who was profiled in 1995 as part of a "medical mystery" series on another network (NBC's Dateline) when she was 12 years old but "frozen" at the size and developmental stage of a six-month-old baby.

Both these cases are fascinating, not least because they tap into something most parents say at one point or another during their baby's first year -- oh, I wish she could stay this small forever! -- it's something we say but of course do not really mean. The idea of a child who does not, cannot, grow and grow up, is so strange and sad it can seem like the stuff of fiction. In the real world, it's just another reminder of how lucky you should consider yourself if you have a child who is healthy and thriving. 

 

More By This Author:

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Comments

 

pregnant_peanut said:

I wonder if they've considered the possibility of Primordial Dwarfism, it's exceedingly rare (less then 100 cases in the world are currently reported) and it's normally caught only when a confused family finally makes it to a big enough hospital where an overly studious doctor has actually heard of the condition.

February 4, 2009 1:46 PM
 

Kate Tuttle said:

Yeah, I would have guessed that, too, except that from what I've seen of kids with primordial dwarfism, they tend to have a specific facial gestalt (small head, small chin, close-set eyes, large nose) that this baby doesn't have. Also, despite their size they tend to learn to walk and such, and I got the impression (though it isn't spelled out) that Suraya is behind on development as well. It seems like it might just be one of those as-yet-unexplored rare syndromes. So very sad, yet if you watch the video in the article I linked to about Brooke Greenberg, her family loves her very much, and cares for her with great tenderness and obvious joy. Having a child who would always be a baby is really hard for me to wrap my head around.

February 4, 2009 1:54 PM

About Kate Tuttle

I'm raising a toddler and a teenager in a leafy suburb just outside Boston. In between having kids I've been an editor and writer, most recently with the African American National Biography and the late great Africana.com.

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