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Sally Massagee: Mom of Five Has Mystery Disease

sally massagee

Sally Massagee's Mystery Disease

When Sally Massagee, a mom of five, began to inexplicably bulk up like a body builder, she knew something was wrong. But doctors couldn’t figure out what it was.

“Everyone assumed that I spent a whole lot of time in the gym,” she tells CNN. “One doctor said how many hours a day do you spend in the gym?”

The strange thing was that Massagee, who operated a CPA firm, wasn’t working out at the gym or taking steroids. And her muscles mysteriously continued to grow and harden causing her intense pain. Soon, even walking or standing became excruciatingly painful.

After years of desperately seeking help, Massagee finally found doctors who were determined to get to the bottom of her diagnosis.

In 2008,  she was admitted to the National Institutes of Health’s Undiagnosed Diseases Program. Finally, last May, she received a diagnosis: it seemed that abnormal proteins were attacking her skeletal muscles.

Tonight, CNN will present an investigation into Massagee’s unusual case and her hope for a cure. Here is a sneak peek:

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Video and Photo: CNN

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