Soulumination Documents the Priceless Yet Fleeting Joy of Families with Terminally Ill Children (PHOTOS)Meredith Carroll
Even if you don’t believe in God, you’ll have to agree that Soulumination is doing God’s work.
Lynette Huffman Johnson is a professional photographer who has long snapped people during their most joyful moments — think weddings and births. But when her sister-in-law had a stillbirth in 1996, a social worker suggested Johnson mark that occasion with photos, too.
While she said she left the hospital shaken to the core, the photos were part of her family’s healing process, and she knew that if she could do it for her niece, “I could do it for anybody,” Johnson told Babble.
And she does. Free of charge. But she doesn’t do it alone anymore — a team of 35-40 photographers in the greater Puget Sound area of Washington offer their services to families with children 18 and younger — some as young as minutes old — who are facing life-threatening illnesses in an effort to help “have the memories close and clear,” Johnson said.
Soulumination provides each family with a hand-made album, with each person at the shoot also receiving a brag book filled with pictures, the mom getting a little bracelet, and a local frame shop donating a 5×7 framed photo. The organization remains local in an effort to stay “heartfelt,” but Johnson and her paid staff of three occasionally help, upon request, families in other parts of the country who want to preserve the delightful faces of their sick little ones just by personally picking up the phone and calling around to find photographers who can help.
Johnson once had an art book that said of creating projects: “You have your brush, you have your colors, you paint paradise and in you go.” And that’s what she and Soulumination have been doing by honoring these beautiful young souls and their families through photographs.
Take a look:
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