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Unstoppable, Inspiring, and Completely Ordinary: Awesome Photos of Tube-Fed Kids

Today is the last day of 2012’s Feeding Tube Awareness Week. After I ran a post earlier this week featuring several families that tube-feed their children, I received emails from other parents, who also have kids who “eat” in this special way, with photos of their kids being unstoppable, inspiring, and generally awesome.

There are hundreds of reasons why someone might need a feeding tube, but the kids in these photos all have Eosinophilic Esophagitis (EE), a rare disorder in which food attacks the body. Some people with EE can eat a few foods, and some can’t eat any foods safely. They live on prescription, medical formulas like Neocate or Elecare.

These kids (like their parents) are both absolutely amazing, and completely ordinary. Take a look.


  • Feeding … at Fenway Park! 1 of 12
    Feeding ... at Fenway Park!
    Forget peanuts and Crackerjack. Danny (pictured here a couple years ago) does a backpack feed on his dad's lap while watching the Boston Red Sox. Bonus: he even got a ball!
    (Photo used with permission from the family.)
  • Feeding … at Fenway Park (again)! 2 of 12
    Feeding ... at Fenway Park (again)!
    Danny now six years old, uses gravity feeds, which are a faster way to get the nutrition in, and get back to watching the game.
    (Photo used with permission from the family.)
  • Feeding … in the pool! 3 of 12
    Feeding ... in the pool!
    Like any other kid, Danny does not want to get out of the pool for a snack. His g-tube port is completely sealed and waterproof.
    (Photo used with permission from the family.)
  • Feeding (and gorgeous) … in the hospital! 4 of 12
    Feeding (and gorgeous) ... in the hospital!
    Samantha, who will be 15 in April, is all smiles doing a feed in the hospital.
    (Photo used with permission from the family.)
  • Feeding … while making a ‘birthday cake’! 5 of 12
    Feeding ... while making a 'birthday cake'!
    Samantha can have very, very few foods. Smarties candies are one of her only treats, so she hot-glued a bajillion packets to cases of Elecare to create a birthday cake for herself.
    (Photo used with permission from the family.)
  • Feeding … before a football game! 6 of 12
    Feeding ... before a football game!
    Jake (ten) and Carson (eight) gear up before a football game. Jake and Carson's family makes a point of taking photos of the brothers doing feeds in fun and unusual places.
    (Photo used with permission from the family.)
  • Feeding … at half-time! 7 of 12
    Feeding ... at half-time!
    Jake re-fuels at half-time. This is not the image people think of when they think "feeding tubes," is it? Go, Jake!
    (Photo used with permission from the family.)
  • Feeding … and being Dr. Evil! 8 of 12
    Feeding ... and being Dr. Evil!
    Carson and Jake imitate Dr. Evil from the Austin Powers movies while doing a feed. Empowering your kids with humor for the win.
    (Photo used with permission from the family.)
  • Feeding … at a Colorado Rockies game! 9 of 12
    Feeding ... at a Colorado Rockies game!
    Note that everyone's eyes are on the game, not on the kid doing the gravity feed.
    (Photo used with permission from the family.)
  • Feeding … at Red Rocks! 10 of 12
    Feeding ... at Red Rocks!
    Jake and Carson stop at Red Rocks Amphitheater for a gravity feed.
    (Photo used with permission from the family.)
  • Feeding … in the woods! 11 of 12
    Feeding ... in the woods!
    Ten-year-old Zachary, who has a nasogastric (NG) tube, enjoys an apple on a stroll through the woods.
  • And one video: 222 families that tube-feed their children 12 of 12
    And one video: 222 families that tube-feed their children
    Check it out ... not one person in any of these photos looks sad. In fact, they're thrilled: tube feeding is keeping their kids alive, healthy, and active.
    (Video courtesy of the Feeding Tube Awareness Foundation.)

For more information about Feeding Tube Awareness Week, check out the website feedingtubeawarness.org.

Read more from Joslyn at her blog stark. raving. mad. mommy. Follow her on Facebook and Twitter for even more funny.

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