Update: Hospital to Meet with Family of Girl Denied Kidney Transplant

Joe and Chrissy Rivera appeared on Philadelphia's CBS News with their side of the story.

Philadelphia’s CBS News is reporting today that the Children’s Hospital of Philadelphia (CHOP) will be meeting with the parents of Amelia Rivera, a three-year-old who was initially denied a kidney transplant. Joe and Chrissy Rivera, Amelia’s parents, are scheduled to have a conference call with CHOP today to set up a second meeting with the transplant team.

Amelia’s mother, Chrissy Rivera, said in a blog post that a CHOP doctor said that the sole reason Amelia could not have the kidney transplant is because the little girl, who suffers from a rare genetic disorder called Wolf-Hirschhorn Syndrome, is intellectually disabled. Ms. Rivera’s blog post went viral among the special needs blogging community, and CHOP was inundated with phone calls, emails, and Facebook page comments.

The hospital is prohibited by privacy law from discussing the individual case, but released the following statement:

“The Children’s Hospital of Philadelphia does not disqualify potential transplant candidates on the basis of intellectual abilities. We have transplanted many children with a wide range of disabilities, including physical and intellectual disabilities. We at CHOP are deeply committed to providing the best possible medical care to all children, including those with any form of disability.”

According to local news reports, Ms. Rivera has declined to make any further statements, saying that she “likes CHOP and is still hoping for a happy ending in her daughter’s case.”

Meanwhile, comments keep pouring into the CHOP’s Facebook page, and signatures continue to be added to a petition, requesting the CHOP allow Amelia to have the kidney transplant.


Babble Personal Essay: Parenting a Special Needs Child as a Working Mom