My Son Has an Autism Spectrum Disorder
Should I Get Pregnant Again?
I’m at the park, watching my beloved boy run around a playhouse when two mommies look over at me, feign polite interest, and ask if I’m planning on having another. I squirm. I want to lie and get past this moment, but I can’t.
“I’m not sure,” I reply.
One of the moms looks at me as if I just sneezed all over her blouse. I can’t blame her – she knows nothing about scheduling a visit with a neurologist for a toddler, holding him in your arms as he slips into a drug-induced sleep while electrodes are attached to his head. She hasn’t heard (or used) the words “Autistic Spectrum Disorder” to describe her child.
Autism and Asperberger’s Spectrum Disorders: 10 things you probably don’t know.
Autism and ADHD in Children: Is there a genetic link?
Signs of Autism: When is there evidence of disorders on the autism/Asperger’s/PDD spectrum?
It took us a while before anyone believed something was wrong. Our son could recite The Cat in the Hat from memory when he was 20 months but was unable to communicate with us. He didn’t sleep through the night until he was 16 months old and he seemed to get sick constantly. His pediatrician poo-pooed our concerns. “He’s a boy,” she said. “Boys talk later. He’s fine.” But something wasn’t fine. He’d shy away from other children and seemed detached at his 2nd birthday party. Finally, after his daycare voiced concerns, we were referred to a pediatric neurologist.
The neurologist watched my son for about five minutes, asked him a series of questions, asked us a few questions, and then drew a diagram on a scrap of paper to show us where our precious, beautiful child fell on an imaginary, nebulous scale called Autistic Spectrum. He was diagnosed PDD-NOS (pervasive development disorder not otherwise specified), which was explained to us as falling in between Autism and Asperger’s. We felt lost and hopeless. All we could do was cry in the parking lot after the visit.
From that point and through the first few years, we spent considerable amounts of time trying to figure out what had happened to our son and how to make it better. I spent every free moment researching studies and therapies and talking to other mothers to find anything that would help heal our child. Our home was always messy and we were constantly exhausted. I’m pretty sure I was depressed, and dealing with unsupportive family members did not help. But we kept trying.
But you know what? Our son flourished. Of course not as quickly or quite as much as we would have liked, but flourished nonetheless. After all our trial and error, two years later we’re still seeing improvements. He speaks original sentences, he points to things, he has started getting things for himself. He notices squirrels in the trees and noises in other rooms of the house. He makes eye contact. He doesn’t have chronic diarrhea. He’s energetic. We’re still working on social skills and back-and-forth conversation, but he’s started catching up to his peers on the playground.
We got this far in his healing through work and love. He is on a gluten-free/casein-free/soy-free/egg-free/allergen-free diet, attends weekly therapy sessions, takes a few supplements, is under the care of a homeopath, attends a class designed for kiddos with “issues,” takes horseback-riding lessons, and enjoys as much travel and as many Disney visits as we can afford (not much). We’re convinced these measures have helped him (though there’s no guarantee they’ll work for others). Unlike some kids on the spectrum, he thrives on change and takes huge leaps forward in speech, especially after those stimulating trips.
There is no magic solution for helping our kid become the boy he was meant to be before something went awry – something, no one knows what. Genetics? Environmental toxins? Pollution? The epidural I had? I have my suspicions, as do most ASD mommies, but no one can say what or why or how to prevent this damage. In fact, if you are pregnant right now with a boy, then odds are 1 in 70 that he will be born with an ASD, according to the Center for Disease Control. And if you already have a “spectrum child,” the odds your second-born will have an ASD increase to a 1 in 20 chance, according to the National Institute of Neurological Disorders and Stroke.
Those numbers are part of why I quaver when asked if I’ll have another child. And though I feel somewhat prepared this time around and know I would do a few things differently – avoid plastic water bottles, turn down the flu shot, eat organic foods, alter the vaccination schedule – that doesn’t change the feeling I get when watching severely autistic children, who can’t even speak, at my son’s therapy sessions. Can my heart manage a severely autistic child? I just don’t know.
A few months ago, I took our son to a local beach resort for sorbet and outdoor playtime. As he was running around, another little boy approached him. They seemed to acknowledge each other ever so slightly before the boy ran off. I wondered if I’d need to explain to his parents why my son wasn’t saying hello. Then I saw it: a slight excited flop to the little boy’s wrist that is a telltale sign of autism. Next I noticed his uncoordinated running and complete lack of interest in anyone nearby. More autism flags. Was he ASD too, I wondered? I watched his parents tending to their other child – a little girl, possibly 10 or 11 months old – while keeping a protective eye on their boy. I looked at the little girl longingly, wondering if I’d ever be brave enough to try – to look those 1 in 20 odds in the face and just say to hell with it.
At that moment the little boy ran off towards his family, a little too fast and on a direct course towards his crawling baby sister. The father jumped up from the grass, rushing towards his now galloping son in a gentle, pre-emptive strike. “Don’t touch your sister! Don’t touch your sister!” He chided before redirecting his run and settling back on the grass near his youngest. The spell was broken; reality, fears, and worry quickly settled back into my bones with an alarming ferocity. Is that what it would be like? Would having a second child, ASD or not, turn our son into someone we had to watch with a wary eye, like an old dog who might bite without provocation?
If we wait another year or so before adding to our family, our son may be even more on track with his peers, but there’s no way to know for sure. And therein lies the rub: no one knows. In life, tragedy and joy always seem to be right around the corner. I suppose all I can do is hope, pray, and summon up the courage when, and if, the time comes to try.








Thank you for sharing your story. I wish you and your family all the best and I’m sure whatever decision you make will be right for your family.
We have a 5 year old boy with PDD-NOS. Last November, he became a big brother! We were 100% sure never wanted another child because we were so incredibly exhausted (and broke) after dealing with him. I was certain the next one would have issues too. In other words, we had all the reasons in the world not to have a second son. But then a year ago, while we started seeing a lot of improvement in my son’s behavior, we decided to take the leap. I couldn’t be happier. I’m not taking the baby (another boy) for granted and really enjoy the ride this time around. With my oldest, we had our suspicions that something was wrong when we was a small baby. His brother, on the otherhand, is completely different than he was. I’m keeping my fingers crossed he will be “normal”. The baby loves looking at his brother jump on the trampoline and do all his “weird” stuff. And the brother sometimes notices the baby, giving him a kiss, putting a hat on him or taking away a toy he is holding. I cherish each and every one of those moments. Anyway, I wish you good luck in the future. I can’t tell you what you should do but from my experience another baby has been the best thing that ever happened to us.
BRAIN, CHILD had a terrific article a few years ago about this phenomenon called stoppage.
There was a study out that said in families it tends to be the oldest child with autism –I laughed!! Of course!! b/c we stop vaccinating after the first. I freaking when I found out I was PG with #2. They would be 8 years apart and SO very different –but in ways the same.
I refuse to vaccinate my youngest. He is wicked smart, but there are hints of the genetics there that would have formed the gun –fired my vaccines. I have no doubt that if my youngest was vax’d he would be autistic as well. He is healthy… he is bossy
He helps out with his brother –but sometimes takes it too far. He is starting to understand that life as a “autism” sibling isn’t always fair. But he handles it as well as a 6 year old can.
I would say go for it if you really want to. These are waters that you will learn how to navigate as you go. You keep them vaccine free, you feed them good food and trust you gut.
:X forgive the typo’s… should have proof read first huh?
Jenny at Autismwars-
Don’t give me that!
Vaccines -do not- cause autism. Autism usually isn’t life-threatening anyway, if I have Asperger’s and can learn
to cope, so can your kids. Plus, you’re doing yer kids a disservice by not vaccinating them.
Jenny at Autismwars – choosing not to vaccinate your children is essentially letting the rest of us take the fall so YOUR kid can be safe (assuming you actually believe this crap, despite MOUNTAINS of solid research debunking the so called vaccine-autism link). And no matter what ridiculousness you believe, choosing not to vaccinate puts the rest of us at serious risk for a host of horrible and potentially fatal diseases. Not vaccinating is a selfish, foolish and ultimately immoral choice. Period.
Thank you for the great feedback. This momma appreciates it.
@terram – I think vaccination is a personal choice too. All parents should take the time to read the package insert & learn the risk of reactions, as well as the years of benefit from that particular vaccine. There are new findings everyday about autism. I wish vaccination wasn’t such a heated/loaded topic.
First of all, Aspergers in NOT autism. My son is severely ill, cannot function on his own.. etc etc… He has SEVERE autism. That is worlds apart from Aspergers… hell, not even in the same universe!! He also has epilepsy from his vaccines. Should he jsut “suck that up” and deal too?? Your words advertise your ignorance.
terram. Even the vaccine manufactures admit that there are possible side effects to the vaccines. Do you know something they don’t? It is called informed consent. They are required by law to inform me of the risks and, by law, I may abstain. IF you believe that vaccines are so safe and effective than what are you worrying about?? If my kid gets sick yours will be fine!!! (assuming you actually believe this crap, despite MOUNTAINS of solid research debunking the safety and efficacy of vaccines).
Are you aware of how vaccines or any medicine for that matter gains FDA approval? Are you aware of the process? Did YOU study cellular biology? Do you have a basic understanding of physiology? Just curious. You might want to educate yourself.
http://www.cbsnews.com/8301-31727_162-20049118-10391695.html
terram — what are you worried about if YOU are vaccinated??
aurastar — just because autism and aspergers fall under the same “umbrella” does not mean they are the same, or even close. that’s like comparing apples to assholes… they both start with “a”, so they should both taste good and keep the doctor away!!
as for a response to the article — i would be terrified to have another child if my first was diagnosed with autism. i have seen a family with 4 kids — all diagnosed somewhere on the spectrum. i did not question the vaccines with them… so i cant answer that question. i say, if you do it — you are a brave, brave woman!!
Despite what we think we know about ASD, PDD-NOS and the like, there are far more unknowns at this point and for the parent of a child on the spectrum, the possibility of having another child on the spectrum can be worrisome, even downright scary. As a mom of 4, I have 2 girls and 2 boys, all of them vaccinated, and only 1 (my second born child and 1st son) is on the spectrum. All I can say is it’s a highly personal decision only you can make and I wish nothing but the best for you whatever you decide.
http://autismwars.wordpress.com/2011/04/03/make-no-mistake-autism-is-deadly/ Autism IS Life-Threatening
I’m sorry the comments here seem off track to vaccinations (or not) when it’s clearly not the point of your article, and you made it clear that what you have chose is for your individual son. But the point of the article holds true for any parents thinking about more children when one child has a special need, especially if that condition has genetic components. A very thoughtful piece.
I don’t think that the comments were meant to go off track from the article. For parents that have a child on the spectrum that are thinking of having another go ahead. My daughter is 5 years old and has a DX of PDD/NOS I am currently pregnant with my third daughter which is Due in May. I didn’t think that I shouldn’t do it because I have a 14 year old daughter that is no where on the spectrum and is developing normally with no problems. But then the vaccine schedule was different in 1997 too. There are all sorts of factors that can trigger Autism, but I do believe as well that Autism can be triggered from vaccines. All the research I have done points to that simple fact. And of course parents don’t want to believe it could cause Autism in some children because it was debunked. The only problem is if it was proven to be true what would happen??? Pharm. companies would loose their credibility and Lawsuits would pop up everywhere not to mention all the money insurances would be paying out….so does it surprise you its covered up. For those that don’t believe vaccines could cause Autism because your child had all vaccines and are fine, that just means they were not given the predipostion for the vaccines to do them harm. Just like not all people exposed to diseases will die from them. I don’t like to gamble with my childs health…so I will not get my children vaccinated either. This is partly do to the proof…I don’t need people telling me what a bad parent I am because I make this choice. You gamble with your childs health and I will do what is best for mine. Also vaccines have been linked to other auto-immune disorders in children not just autism do research before you come down on other parents for caring about their children.
Whoops didn’t mean to comment Anonymous I thought it would give my name
If Autism isn’t caused then why is it 1 out of 110 children being diagnosed today and 1 out 0f 80 boys when 10 years ago it was 1 out of 10,000? Where is the gene that causes Autism in children??? I have yet to hear of it. If any of you know something that I don’t please feel free to fill me in. Also please fill me in on what is put in vaccines so I know that you did your homework before you discredit others.
Thank you so much for this article. I feel that this is something so many families (including mine) deal with but inane not seen much written about it. My son (3 years old) is on the spectrum and we have struggled with our desire to have more children and our desire to give our son (and any future children) with the attention, environment and interventions they need. We are now expecting our second child, a surprise, in September and while we worry about so many things I truly believe that my son will be an amazing big brother and will learn so much from his new sibling whether our new child is on the spectrum or not.
Have you considered doing fertility treatments to have a daughter? It would reduce the chances. You can do IUI for sex selection – it has a pretty good success rate and is fairly inexpensive. Not guaranteed like IVF is, but much cheaper.
Ignore the antivax nutters.
When our daughter was six, we finally started asking ourselves this question. We decided that, despite the odds, we wanted to go ahead and try again. And then we spent nearly three years dealing with secondary infertility. I sometimes felt like it was a sign, that maybe we just weren’t meant to have another child; so I threw myself into my daughter’s education and therapies, and watched her thrive. I felt like wanting another child was a betrayal of her somehow, that with a baby around, I wouldn’t be able to give her the attention she needed.
So we stopped trying… and I got pregnant.
Our son will be born sometime in the next month or so. And while I still worry, both about the odds of him being autistic, and my daughter losing out on my time, it feels easier now. At almost ten years old, she’s old enough, and well adapted enough to be a big help with her brother. And she’s even more excited about the prospect of a sibling than my husband or I are.
Sometimes, it works out like it’s supposed to.
My son was 4 years old when he was diagnosed as High Functioning on the Autism Spectrum, possibly Aspergers. When he was in preschool I had fears of thinking of having another child. I felt selfish on not wanting another baby. I thought of going back to work once my son started school full-time. Thoughts of not wanting to go through the sleepless nights and raise another child again. I thought that having another baby would also take away all the attention we were giving our son. But…I also thought that I didn’t want him being alone. Having a sister myself, I feel that she is not only family but she was my best friend growing up. When my son was 5 years old, my husband and I made the decision of having another baby. We asked our son if he wanted a sibling and he said, “Yes!” As soon as I got pregnant I started preparing him, telling him their was a baby in the belly and that he had to be careful with the belly. He was the sweetest boy. He would come rub my belly and softly say, “Hi baby, I love you!” He could not wait for the baby to come out of mommy’s tummy. He wanted a brother, he had the name “Mac” picked being a Cars fan. He would draw family pictures with the four of us. At 20 weeks of pregnancy, I had an ultrasound. My husband, son and sister came with me. When the Sonographer asked if we wanted to know what we were having, we said, “Yes!” She told us that we were having a little girl. My son immediately said, “No, it’s boy!” On the car ride home, we explained to him about the sonogram appointment and showed him the pictures. He came to accept having a sister. As soon as we got home, he started ripping all the family pictures with the name Mac on them. Then he started drawing new pictures with the four of us again, this time the baby was pink instead of blue and her new name was “Mackenzie.” Although we didn’t end up naming our daughter Mackenzie, he helped pick her name. The school even noticed a positive change with him having a sibling, that’s all he could talk about when she was born. Having a second child was the best decision we could have ever made. He is now 8 years old and our daughter is 2 years old. She has been his best social therapy. When our son is at school, my daughter misses him. She asks where he is and if he is at school. When he comes home, she gets so excited to see him get off the bus. She runs to the door and says, “My brother, my brother. I missed you so much!” And when she is not home, he asks where she is and that he wants us to go get his sister. So, to answer your question, I think that you should definitely consider having another child.
Hi Gwen,
Thanks for sharing your story. It warms to heart to hear you have had such success. One of my concerns is that I’ll be so busy with the baby that I won’t be able to give our son the attention and time that he needs and deserves too. But, I suppose that fear is shared by just about every mom who opts to have a second child.
Did having a second child impact your ability to provide your son with therapies? Or did the social aspect of having a little sister make up for that?
Hi,
I just had to comment after the ‘Cat in the Hat’. That was my son at that age – he could also recite “the night before Christmas” lol
He was diagnosed with ASD at just over 3yrs old – when I was 30wks pregnant with son 2. He seems fine so far – all devolpmental stages reached early, and no obvious social/ emotional problems. Son 3 is now 14mths and I admit I watch his development VERY closely. I do have days when I wonder how life will be if he turns out to be on the spectrum – but watching the three of them barrelling around the house together – as noisy and annoying as it can be, makes me know that one way or another, we will be ok and the boys will be there for eachother. My eldest ( with asd) is beginning to learn how to be a protective big brother (at times), wchic is something if you had asked me 3 years ago I would have never imagined possible. All the best.
Great article! I can very much relate as we are debating about adding to our family. We were told our daughter (our first) presented signs of autism at age 3 1/2. Some drs. told us autism spectrum, others Asbergers, other therapists thought PDD-NOS. At the time our second child was 2 (a boy) and he had a speech delay, and our third son was a newborn. I was completely overwhelmed and terrified that I wouldn’t be able to give my daughter the help she needed. We did speech and occupational therapy and after a year in a special needs preschool, brought her home to homeschool. So for the past 3 years we have homeschooled and she has spent a lot of time with her younger brothers, both of whom are neurotypical. She no longer is considered on the spectrum, or perhaps just mildly, so I don’t know if she was misdiagnosed, or if all the therapy helped her develop out of it. I just wanted to say that her siblings have been a tremendous help in her progress. They accept her, challenge her and love her unconditionally. I used to worry that she wouldn’t have any friends, but her brothers are built-in friends. Their relationship gives her the confidence to make other friends, and I’m amazed to see her social skills develop and mature. Just wanted to encourage you all who are expecting – and wish you all the best.
I thank you soo much for this artical! it is everything im feeling. when people ask me if we plan on having another child i hide behind the saying no Gabriel will all ways be my baby when in reality his doing good and is slowly comming along. and mt fear is having another with autism. like you said you know the signs but theres just this fear. and the family that i do say that i would like another child they look at me like why would i do that to my self. i realy just dont know what to do, my like i keep hearing in my head if GOD will bring you to it he will bring you through it!
I don’t normally comment on articles, but I felt I should based on what you said here: “And though I feel somewhat prepared this time around and know I would do a few things differently avoid plastic water bottles, turn down the flu shot, eat organic foods, alter the vaccination schedule that doesn’t change the feeling I get when watching severely autistic children, who can’t even speak, at my son’s therapy sessions.” My daughter was just diagnosed at 2 1/2, but I’ve known something was “off” about her from very early on. I copied the quote above from your article because I wanted to tell you that I did (and always have and always do) all of those things: avoid plastic food packaging, never get or have gotten a flu shot, eat almost exclusively organic, and I had my daughter’s vaccinations given separately, spaced, and at appropriate times. I don’t know where I went wrong, if I did at all. I even had genetic counseling because one of my pregnancy screenings had a false positive. I grew up near, lived in, and now live close to New York City. I can only assume at this point my daughter’s condition is a result of environmental toxins/pollution. No one in my or my husband’s family has this, my daughter is healthy, was breast fed for almost a year, and all her solid foods were fresh and organic prepared from scratch. I have the same fears you do.
I wish you and your family nothing but happiness regardless of what you decide and we only *think* we can control.